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Pulmonary Hypertension and the DVLA
Travelling and going on Holiday with Oxygen
Vaccinations
SPVU Patient Day 2018
HEALTH CARE PROFESSIONAL
– Who to refer
– Suggested assessment prior referral
– How to refer
– Who to screen
– Assessment and follow up at SPVU
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We love the animation in this, and it's a gentle reminder to stick to reliable sources of information about Coronavirus.
twitter.com/BBCNews/status/1246351801512837122?s=19
BBC News (UK) on Twitter
“Within minutes fake coronavirus advice, shared on social media, can reach millions t.co/EHVWGwCffl t.co/3o2cWn0N3d”
An open letter to all of you from the PH doctors of the UK 👇
twitter.com/PHA_UK/status/1244993253830787073?s=19
twitter.com
“"We are confident that this outbreak will pass and that we will get through this together" Click here to read an open letter to the #pulmonaryhypertension community from representatives from all of...Ready Scotland: Preparing for Emergencies
www.readyscotland.org
If severe weather strikes are you prepared at home, on the road and in your community? It takes just a few simple steps to get ready.Good morning!
For those of you who need help with essential groceries and medicines 👇👇👇👇👇
www.gov.scot/publications/coronavirus-covid-19-shielding-support-contacts/
Coronavirus (COVID-19): shielding support contacts - gov.scot
www.gov.scot
For people at higher risk of severe illness from COVID-19: details of support to arrange for food and medicine deliveries, and other support services in Scotland.Good afternoon.
Don't forget to take care of your mental well-being 🌻🏳️🌈🍰🍑🐈🐕🙏🎶🎵💃🕺
www.nhs.uk
Feeling stressed, anxious, low or struggling to sleep? Every Mind Matters and One You can help with expert advice and practical tips. Start the fightback to a healthier you today.We will be sending out a letter in the next few days to all patients with pulmonary hypertension who are on treatment, with some general advice and sources of information.
In the meantime, keep up to date if you can by looking at the *NHS inform* website:
www.nhsinform.scot/illnesses-and-conditions/infections-and-poisoning/coronavirus-covid-19
Coronavirus (COVID-19) in Scotland | NHS inform
www.nhsinform.scot
Latest guidance about COVID-19 from NHS Scotland and the Scottish Government, including social distancing and stay at home advice.Good afternoon.
We are available to speak to you by phone if you are feeling anxious about things. We have reduced capacity to man phones at the moment and so please accept our sincere apologies if takes a while to get hold of us. Medical issues by phone take priority, but we understand this is an anxious time for you all.
We are in this together.
We are here for you.
Meantime, keep taking those PH medicines. Now is a good time to be as well as you can be. Even if you think you take your meds religiously, consider a *health check* on your adherence to your medicine regimes. Take care, be as well as you can be.
www.nhsinform.scot/illnesses-and-conditions/infections-and-poisoning/coronavirus-covid-19/coronav...
Coronavirus (COVID-19): Shielding
www.nhsinform.scot
Why shielding is important to stop the spread of coronavirus (COVID-19) and who is most affectedwww.nhsinform.scot/illnesses-and-conditions/infections-and-poisoning/coronavirus-covid-19/coronav...
Click on the link or else copy and paste into your browser.
Excerpt from 'COMMON QUESTIONS' section on site, this day 24th March 2020:
How can I get assistance with foods and medicines if I’m shielding?
You should ask family, friends and neighbours to support you and use online services.
If this isn’t possible, then the public sector, business, charities, and the general public are gearing up to help those advised to stay at home.
Discuss your daily needs during this period of staying at home with carers, family, friends, neighbours or local community groups, to see how they can support you.
The government is helping pharmacies to deliver prescriptions. Prescriptions will continue to cover the same length of time as usual. If you don’t have your prescriptions collected or delivered, you can arrange this by:
asking someone who can, to pick up your prescription from the local pharmacy (this is the best option, if possible)
contacting your pharmacy to ask them to help find a volunteer (who will have been ID checked) or deliver it to you
You may also need to arrange for collection or delivery of hospital specialist medication that’s prescribed to you by your hospital care team.
If you receive support from health and social care organisations, such as care support through your local authority, this will continue as normal.
Your health or social care provider will be asked to take additional precautions to make sure that you’re protected.
Coronavirus (COVID-19): Shielding
www.nhsinform.scot
Why shielding is important to stop the spread of coronavirus (COVID-19) and who is most affectedExcellent resources right here 👇👇👇
www.nhsinform.scot/coronavirus
Coronavirus (COVID-19) in Scotland | NHS inform
www.nhsinform.scot
Latest guidance about COVID-19 from NHS Scotland and the Scottish Government, including social distancing and stay at home advice.https:/www.gov.scot/coronavirus-covid-19/
Coronavirus in Scotland - gov.scot
www.gov.scot
Up to date information on the coronavirus situation in Scotland, including confirmed cases, health and travel advice.Further to recent governmental guidance, if you have PH you should regard yourself as being in a vulnerable group. We would strongly recommend that you self isolate until further notice for your own protection against Covid-19. We understand this is very disruptive to you all, but feel in the current climate that this is the best and safest recommendation we can offer.
See next post for further links and advice.
From 23rd March, we are temporarily increasing our office hours to include Saturdays and Sundays 10am to 1pm, so that we can support our members as fully as possible.
You may not need to speak to us during these times, but we will be there if you need us. #TogetherForPH
*NEWS ITEM FROM THE UNIT*
Coronovirus has become a major health issue for all of us in the UK. At the SPVU we understand that you will be concerned and worried about this. We want you to know that we are here to help you. Over the next few months we are reducing the level of face to face contact that we have with you in clinic. This is in an attempt to try and prevent the spread of this virus by avoiding trips to the hospital. However, we are still available for you. For those of you who have an upcoming clinic appointment we will be contacting you by telephone to ensure that you are supported. For everyone, remember the core advice is to avoid unnecessary social contact and to wash your hands more. This is a difficult time for all of us but we are with you, and here for you, and we will get through this together.
www.phauk.org/…/coronavirus-a-message-from-our-cha…/
Helpful information about Covid-19 and PHCoronavirus update: We have published our advice for people with PH on our website here: www.phauk.org/living-with-pulmonary-hypertension/coronavirus-a-message-from-our-chair/
We filmed an interview with our Chair, Iain Armstrong, this afternoon and will aim to make this available as soon as possible.
Research
The Scottish Pulmonary Vascular Unit runs programmes in clinical and basic science research
PHA UK FACEBOOK FEED
"This is how we are trying to keep things bright in these difficult times"
Member Lou Chadbhurn sent us this caption with her fab photo of her family (who all live together) making the best of being at home this weekend ✨
Member Tamsin Hutchings has been spending her time sketching her beautiful birds - has anyone else been enjoying arts or crafts whilst at home? We'd love to feature some of your creations in the next issue of Emphasis, so do send us photos of your paintings, drawings or craft projects 🎨
The best way is by email to media@phauk.org, or you can send via private message too.
We will always do our best to answer your questions related to Covid-19 but please be aware that the PHA UK office team (who respond to emails, messages and phone calls) are not medically trained. As such, unfortunately we are unable to advise on specific medical issues. The information on our website has been provided by clinical specialists within the PH service.
If you haven’t had a letter from the government confirming you are classed as extremely vulnerable, you may find the open letter from the specialist centres on our website useful. You can access it here: bit.ly/2wY8z8Y
We will continue doing our best to support you in any way we can 💜
Our private Facebook group is a secure forum to talk directly with other people affected by PH - whether you're a patient, carer or loved one. How to join:
⭐️Follow the link at the bottom of this post
⭐️Hit the 'join group' button
⭐️Answer the questions that come through as private messages - these are screening questions sent to everyone to keep the group private (don't forget to check your 'others' folder!)
⭐️An admin will then approve your request and you'll be part of the group.
Link to join: bit.ly/39FkXrU
*Looking after yourself at home if you have symptoms of Covid-19*
The PHA UK's Paul Sephton and Shaun Clayton have some important advice in our brand new infocast here: bit.ly/39DWMtY
(Includes a link to download a written transcript of the conversation)
*Coronavirus health myths to ignore*
There is a lot of misleading information being shared online, especially via social media. The BBC are doing a great job of busting these myths - here is their latest round-up: www.bbc.co.uk/news/av/52093412/coronavirus-more-health-myths-to-ignore
*Your thoughts*
We're developing our website to help you as much as possible over the next few weeks and months while you're at home. What would you like to see online? Exercise resources, recipes, tips from other members, mental health resources? Resources for children? Please let us know what might help you below (or by private message) and we will do our best. #StrongerTogether
Member Margaret Vickers has been keeping busy in the kitchen by making bread, cornish pasties, cheese and onion flan, cauliflower cheese and chill - along with spicy tomato chickpeas, soups, flapjack and biscuits too 🍞🍲🍪
"We are confident that this outbreak will pass and that we will get through this together"
Click here to read an open letter to the pulmonary hypertension community from representatives from all of the UK's specialist centres: bit.ly/3bxnGVI
We'd love to see what you've been cooking and baking over the last week or so! Shaun, our director of membership support, has been getting busy in the kitchen with these culinary delights 😋
Meal ideas and tips (especially for cooking on a budget or with limited ingredients) welcome too! Let us know below 👇
Edited to add: Not all photos need to look as good as these 😉
Our mailing with advice on keeping well at home should reach you in the next day or so. In the meantime, you can download and print the window poster here: bit.ly/3asU0ZO
If you've already received yours through the post, why not pass this link to family or friends who would benefit from the poster? 💙
We know this a very difficult time for carers as well as people with PH. Carers UK have a comprehensive information page that answers common questions and signposts to support: bit.ly/2UKAFwA
We are working on our own materials specifically for the PH community ❤️
Our charity partner Anxiety UK (official) are running regular webinars to help people struggling with the emotional impact of the coronavirus epidemic. You'll find previous webinars and details of the next (plus lots of other useful resources) here: www.anxietyuk.org.uk/coronanxiety-support-resources/
*Simple exercises to help you get fitter and stronger at home*
Step-by-step exercises for people with pulmonary hypertension, that can all be done in your house: www.phocusonlifestyle.org/different-ways-you-can-exercise/
VIDEO: Simple exercises to help you get fitter and stronger at home | Phocus On Lifestyle
www.phocusonlifestyle.org
You don’t need a gym, or even a pair of trainers, to start getting fitter and stronger with PH. In this special set of videos, Carol Keen and Trudi Scott, Specialist Physiotherapists in Pulmonary...PHA UK TWITTER FEED
Member Tamsin Hutchings has been spending her time sketching her beautiful birds - has anyone else been enjoying arts or crafts whilst at home? We'd love to feature some of your creations in the next issue of Emphasis, so send your photos to media@phauk.org 🎨
2Thank you NHS 👏 👏 👏 #ClapForCarers #clapforkeyworkers #clapforNHS