LATEST NEWS
Pulmonary Hypertension and the DVLA
Travelling and going on Holiday with Oxygen
Vaccinations
SPVU Patient Day 2018
HEALTH CARE PROFESSIONAL
– Who to refer
– Suggested assessment prior referral
– How to refer
– Who to screen
– Assessment and follow up at SPVU
Our teaM
SPVU FACEBOOK FEED
A big clap for all those shielding at home. We know it's not easy. Keep up the effort. We are proud of you.
Hello! Something new to bring to your attention. 👇
You can enter your Covid Pandemic experience in a survey being carried out by the European Reference Network of Rare Lung Diseases (ERN-LUNG). Please use the link below, or copy it into your browser, if you would like to go ahead. This is a global survey dedicated to PH patients.
Participation is voluntary.
ern-lung.eu/portfolio-items/phcare-covid-survey/
Well done, Warrior Tess
www.facebook.com/331773100361224/posts/1460947847443738/
Timeline PhotosIf you have PAH, please take 2 minutes to answer our short survey: www.surveymonkey.co.uk/r/genetics_PAH_information_needs
Thank you to everyone who has shared their thoughts so far 🙏
This lovely video was sent to us from one of our patients Colin Reid. He was involved in the making of this film, mainly with musical content and storyline. Thank you Colin the effort is much appreciated
SPVU would like to thank all the hard working, wonderful nurses of the world on International Nurses Day.
Minimal change to Lockdown rules in Scotland.
Added to this, shielding advice is still in place. Stay safe xxxxx
twitter.com/PHA_UK/status/1259496426939260928?s=19
twitter.com
“if you're anxious, depressed or stressed you can access FREE therapy sessions via our partnership with @AnxietyUK. Just need a listening ear? They have a dedicated helpline and email service too, e...In celebration of VE Day, let's all recall the iconic words of Dame Vera Lynn, 'We"ll meet again...'
And we are looking forward to it!
twitter.com/PHA_UK/status/1257596402777108482?s=19
twitter.com
“Today marks the annual World PH Day and although the world looks a little different this year, we still need to make our voices heard. #WorldPHDay2020 #TogetherForPH”Happy May Day weekend! Did anyone remember the folk tradition to wash their face in May Day morning dew on May 1st?
www.facebook.com/331773100361224/posts/1441737669364756/As we begin another new week, here are five important things to remember right now 💜
Andy Gillies is the Spiritual Care lead at the Golden Jubilee. He has kind words for us all here 👇👇👇. Be kind to yourself.
Spiritual care is for all, whatever your faith. If this is something you would like to access as part of our Service, do bring it up when you talk to our nurses and/or doctors.
www.facebook.com/184792054937541/posts/2850468225036564/
It’s here 😃. Our very own podcast star Dr Johnson chatting to Iain Armstrong of the PHA UK**INFOCAST: Scotland, PH & Covid-19**
Dr Martin Johnson, Director of the Scottish Pulmonary Vascular Unit, tells the PHA UK’s Iain Armstrong how the Scottish pulmonary hypertension service is managing the pandemic, and advises patients on what they should do if they become unwell with coronavirus.
Listen here: bit.ly/34UM3dZ
Research
The Scottish Pulmonary Vascular Unit runs programmes in clinical and basic science research
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That may have been the last official #clapforcarers but we will all continue to celebrate the amazing NHS who support us every day 👏
If you're struggling to get essential food items whilst shielding - or don't want to order online - this new service from Morrisons might help.
If you live within 10 miles of a store, you can call and order a selection of items for next day delivery, with card payment taken on delivery (at a distance).
More details and a list of what can be ordered can be found here: my.morrisons.com/doorstep-deliveries/
Please share with anyone you know who isn't online but may need help.
Morning Everyone
Hope you are all staying safe and enjoying the sunshine 🙂
I am currently reviewing our fundraising packs and trying to ensure we send out what people actually need. I would appreciate it if anyone has any suggestions of what would be helpful in a pack to contact me at helen@phauk.org or comment below. All feedback appreciated 🙂
*Covid-19 & PH survey coming soon*
We're about to launch an important survey to understand how the coronavirus pandemic has impacted people living with pulmonary hypertension. The survey will be enclosed with the next issue of Emphasis, and will also be available to complete online from next week. Please keep your eyes peeled for updates.
We have discovered that someone with pulmonary hypertension has recently received a notice from the National Shielding Service advising that their GP or hospital clinician has recommended they no longer need to follow government advice to shield.
Although this may be an isolated incident, if you do receive this notice in the near future it should be ignored. *If you have pulmonary hypertension, it is vital that you continue to shield*
Please follow this link to find out more: bit.ly/3gsYSkZ
Our new 28-day positivity calendar sets out small daily tasks to help you feel better whilst shielding.
You can download it now here: bit.ly/36wCpPs
A printed copy will be included for free in the upcoming issue of Emphasis 🙌
Third weigh in complete and our SPVDU super slimmers have shed an amazing 22lb between them so far! 💪
To support them, or find out more about how their weight loss challenge is helping the PHA UK, please follow this link: www.justgiving.com/fundraising/iainandjohn
*You matter*
Get your personalised NHS mind plan by taking this short quiz: www.nhs.uk/oneyou/every-mind-matters/your-mind-plan-quiz/
Keeping active at home is really important - for both body and mind 🧘♀️
We've put together some links to gentle exercises you can do in your house: www.phauk.org/coronavirus-pulmonary-hypertension/keeping-well-at-home/
If you have any other online resources you can recommend, please let us know and we will add them.
If you shop online, Easy Fundraising makes a donation to the PHA UK on your behalf - at no extra cost to you. It's now even easier when you use their app! 💞 Find out more and download the app here: www.easyfundraising.org.uk/easyfundraising-app/
Final call for your thoughts! If you have PAH, please complete our short survey before Monday: www.surveymonkey.co.uk/r/genetics_PAH_information_needs
Your summer issue of Emphasis has gone to print today 🙌
It will start landing on doorsteps from the middle of June and we hope you enjoy reading it as much as we have enjoyed putting it together 🌈
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As a member of the PHA UK you automatically receive the magazine each quarter. It's free to join, so if you're not already as member, fill in the short online form and join our PH family: www.phauk.org/get-involved-with-the-pha-uk/become-a-member/
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Not sure if you're a member? Send us a private message and we will check 🙂
*Guidance on celebrating Eid safely this weekend*
The Muslim Council of Britain has published the following advice for celebrating Eid Al-Fitr in lockdown: mcb.org.uk/press-releases/eid-al-fitr-2020/
Join us at 8pm in thanking those giving their all to keep us safe 👏
#clapforourcarers #ClapForTheNHS
From today, the 'opt out' organ donation system comes into effect in England. This means that all adults in England will be considered as having agreed to donate their own organs when they die unless they record a decision not to donate (known as ‘opting out’) or are in one of the excluded groups.
Find out more: bit.ly/2zPAxoC
#PassItOn
