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– Who to refer
– Suggested assessment prior referral
– How to refer
– Who to screen
– Assessment and follow up at SPVU


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ScotGov have published some advice for those leaving shielding today. If anyone has any worries or concerns about the pausing of shielding please give us a call on 0151 951 5771/5623/5621 and we can have a chat. ... See MoreSee Less

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The Scottish Government shielding route map. Hopefully you’ll be able to enlarge this photo enough to read it. If not you can view it here
www.gov.scot/binaries/content/documents/govscot/publications/advice-and-guidance/2020/03/covid-sh...
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Timeline PhotosOur quick guides to understanding key aspects of the benefits application process are available to download now: bit.ly/3f5Gldi
Choose from:
✔️ What benefits are available
✔️ Important definitions
✔️ The WHO Functional Class
✔️ The appeals process
We know the process can be daunting, so we hope these free resources help 💙
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*Downloadable mask exemption notice*
Get yours here 👉 bit.ly/2VOaDd5
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If you have pulmonary hypertension, you do not have to wear a mask if it affects your breathing or makes your symptoms worse. You are exempt even in places where wearing a mask is required, for example on public transport in England and Scotland.
We understand that PH is an ‘invisible illness’ and therefore those around you may not understand why you are not wearing a mask. That’s why we have designed a printable notice that you can carry with you, and display if you are challenged. You can also show it on your phone.
If you don't have a printer, please email office@phauk.org and we will happily post you one out.
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We know that for some people with PH, wearing a mask or face covering can be difficult. We're working on a downloadable notice that you can print and carry with you should you be challenged, explaining that you have a condition that affects your breathing.
Young children and people with disabilities or breathing problems are exempt from having to wear a mask in areas where it is compulsory (such as on public transport) - but we know that PH is an invisible condition and others don't always understand. Look out for the notice coming soon 💙
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Chief Medical Officer, Scotland has issued new advice. Summary in bullet points: 👇

⚠️ Shielding to continue till 31st July

⚠️ Watch out for an announcement around 18th June allowing exercise out of doors, providing you follow guidance to do this safely

⚠️ The Country acknowledges the personal sacrifice you are making by shielding. It is clearly working by keeping infection rates down 👏

⚠️ Some face to face health care appointments are necessary, although many can be handled by telephone or video-link

If in doubt, give us a call ☎️. We are here to help.
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Shielding advice for Scotland is unchanged, confirms First Minister Nicola Sturgeon. ... See MoreSee Less

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Hello! Something new to bring to your attention. 👇

You can enter your Covid Pandemic experience in a survey being carried out by the European Reference Network of Rare Lung Diseases (ERN-LUNG). Please use the link below, or copy it into your browser, if you would like to go ahead. This is a global survey dedicated to PH patients.

Participation is voluntary.

ern-lung.eu/portfolio-items/phcare-covid-survey/
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Well done, Warrior Tess

www.facebook.com/331773100361224/posts/1460947847443738/
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Research

The Scottish Pulmonary Vascular Unit runs programmes in clinical and basic science research

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Our short survey about apps and pulmonary hypertension closes on Sunday!
If you haven't already, please take 5 minutes to share your thoughts about an app that might help you manage your PH: www.surveymonkey.co.uk/r/SHP8YFL
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Our private Facebook group is a safe place for you to chat to other people affected by PH and even if you don't want to post, you can benefit from reading the conversations. Follow this link to join: www.facebook.com/groups/125342770826215/ ... See MoreSee Less

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Do you need help to manage anxiety, panic or worry?
We’ve partnered with psychology researchers to trial a new self-help programme and we're looking for people with PH to take part. It can all be done from the comfort of your own home - there is no need to travel anywhere and you can work through the programme at your own pace. More details: bit.ly/3kcZixz
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It may be a rare disease, but you're not on your own 🤍 ... See MoreSee Less

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Did you know we have a separate website dedicated to helping you live your life with PH? Our lifestyle site is packed with real life stories, general health advice, blogs, videos and more 🧡 Check it out here: www.phocusonlifestyle.org/ ... See MoreSee Less

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Thank you to everyone who has filled in our short survey about apps and pulmonary hypertension. If you haven't yet, please take 5 minutes to let us know whether you would find an app to manage your PH useful. If you're not interested in apps, it's still important to let us know this in the survey: www.surveymonkey.co.uk/r/SHP8YFL ... See MoreSee Less

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A few more of your photos from yesterday's #walkwithus virtual event. Keep them coming, we're really enjoying seeing them! 🚶‍♀️🧑‍🦼 ... See MoreSee Less

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Our littlest #walkwithus participant Isla walking for PH today at just 16 months old!
Thank you to mum Louise for sending the video 🧡
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Here are just a few of your fantastic photos from today's #walkwithus virtual event. Wherever you walked, and however far, we'd like to say a huge thank you - and look out for a special video featuring highlights from your challenges coming soon! 🙌
Don't forget to send us your pics and videos 👍
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PHA UK member Julie is walking with her friend and grandson and they sent us this little video just before they set off - good luck gang!
#walkwithus #TogetherForPH
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Good luck to everyone walking today! Sid the spaniel is ready to walk in memory of his dad Josh Parker 💛🐶
#walkwithus
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If you're taking part in our virtual #walkwithus event tomorrow, don't forget to take a pic and send it to us 🤳
You can either send it as a private message or via email to media@phauk.org - and you might see yourself online or in the next issue of Emphasis!
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Could this be our youngest #walkwithus participant?
16-month-old Isla has just started walking and will join her mum Louise, who has PH, on Saturday 🥰
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Find out how you can get involved in our virtual event here: bit.ly/30biVy1
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This weekend would have seen The British Transplant Games taking place in Coventry, celebrating life after transplant.
As the PHA UK was due to sponsor the walk event, our #walkwithus virtual event will be taking place on Saturday at 1pm, and is open to all: bit.ly/331ULIl
We're looking forward to the Games returning in 2021 🙌
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The weather forecast is looking good for Saturday and we can't wait to walk! ☀️
Comment 'me' below if you'll be taking part in our virtual walk event (either on foot, on a scooter or in a chair)
No idea what we're talking about?! You'll find all the info about #walkwithus and how you can get involved here: www.phauk.org/get-involved-with-the-pha-uk/walk-with-us/
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PHA UK TWITTER FEED

We spoke with Dr John Wort, our clinical lead for pulmonary hypertension, about how Covid-19 has impacted his work, adapting to care for vulnerable patients and providing specialist expertise to support frontline staff. Read more here: https://www.rbht.nhs.uk/research/impact-covid-19-interview-dr-john-wort

Do you need help to manage anxiety, panic or worry?
We’ve partnered with psychology researchers to trial a new self-help programme & we're looking for people with #pulmonaryhypertension to take part. More details: https://bit.ly/3kcZixz

Are you on Facebook too? Our private Facebook group is a safe place for you to chat to other people affected by PH. And even if you don't want to post, you can benefit from reading the conversations. Follow this link to join: https://www.facebook.com/groups/125342770826215/

Did you know we have a separate website dedicated to helping you live your life with PH? Check it out here: https://www.phocusonlifestyle.org/

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