LATEST NEWS
Pulmonary Hypertension and the DVLA
Travelling and going on Holiday with Oxygen
Vaccinations
SPVU Patient Day 2018
HEALTH CARE PROFESSIONAL
– Who to refer
– Suggested assessment prior referral
– How to refer
– Who to screen
– Assessment and follow up at SPVU
Our teaM
SPVU FACEBOOK FEED
*Help to prepare for benefits assessments*
This new FREE publication gives you the tools, information and understanding to be totally prepared for your benefits assessment.
------
✔️Unpicking the assessment process – who, what, why and when
✔️Evidence, key phrases and what you should draw attention to
✔️The role of carers / loved ones in the process
✔️Checklists and prep forms
✔️Space to record your own notes, prompts and reminder
------
Order for free here: bit.ly/3aX8ROJ
Timeline PhotosWhat equipment do you use to monitor your health at home? If you have PH we'd really appreciate 10-15 minutes of your time to complete our online survey bit.ly/3bjg76j 🙏
If you're reading this but you're not a member, we'd love you to join us! Becoming a member of the PHA UK is totally free and we welcome anyone with an interest in pulmonary hypertension.
Join here: bit.ly/3oXlKMK
------
Members receive our award-winning Emphasis magazine through the door every quarter and benefit from being part of a unique network of support and inspiration.
------
Not sure whether you're already a member? Send us a PM and we'll check 👍
The SPVU nurse team hours are changing short term. As of this week the nurses can be contacted between 8am and 4pm Monday to Friday.
Following this morning’s announcement that the Pfizer/BioNTech COVID-19 vaccine has been approved for use in the UK, the Joint Committee on Vaccination and Immunisation (JCVI) has now published its advice on priority groups for vaccines.
------
The final list of priority groups are now prioritised as follows:
1. Residents in a care home for older adults and their carers
2. All those 80 years of age and over. Frontline health and social care workers
3. All those 75 years of age and over
4. All those 70 years of age and over. Clinically extremely vulnerable individuals
5. All those 65 years of age and over
6. All individuals aged 16 years to 64 years with underlying health conditions which put them at higher risk of serious disease and mortality
7. All those 60 years of age and over
8. All those 55 years of age and over
9. All those 50 years of age and over
------
You can read the full advice document here: bit.ly/3g11Q01
Incase you missed it yesterday. Here is Dr Toshner chatting to Iain about the Covid-19 vaccine. Definitely worth a watch**COVID-19 VACCINES & PH: THE FACTS**
Our interview with Dr Mark Toshner, PH consultant and researcher behind the Oxford vaccine study, is now available here: bit.ly/2IVmYsP
Watch the video, listen to the audio, or read the report of the conversation.
We'd love to know what you think. Do let us know in the comments, and thank you to everyone who submitted questions.
Should be an interesting listen. Make sure you tune inDo you have a question about the COVID-19 vaccines that are currently in the news?
On Monday we are interviewing expert Dr Mark Toshner for a special infocast, and we want to find out the answers that are important to you.
Please send your vaccine question via email only to media@phauk.org, before 9am on Monday, and we will choose as many as we can. Please include 'vaccine question' in the subject line.
Better late than never. Introducing our new SPVU registrar Dr Harrison Stubbs. Dr Stubbs is a great addition to SPVU and we look forward to working with him over the next 3 years.
😷 How to wear a non-medical fabric mask safely during COVID-19:
Do’s and don’ts
📣 PHA UK car stickers now available! 📣
Order yours now for £5 inc P&P and display in time for PH Awareness Week: bit.ly/3ky2uDV
Extra pic in comments showing size 👇🏾
Having received a letter from Scotgov a few people have been asking if it is ok to take the Vitamin D that is being offered to those who were shielding free of charge. It is fine for patients with PH to take Vitamin D. If however you have any further questions please don’t hesitate to get in touch withe the SPVU Nurses
Do you need help to manage anxiety, panic or worry?
We’ve partnered with psychology researchers to trial a new self-help programme and we're looking for people with PH to take part.
It can all be done from the comfort of your own home - there is no need to travel anywhere and you can work through the programme at your own pace. More details: bit.ly/3kcZixz
Thank you, Shelly, for sharing your journey*Tonight at 9pm!*
Tune into BBC2 tonight (6th Oct) to see PHA UK member Shelly undergo a pulmonary endarterectomy in an attempt to cure her Chronic Thromboembolic Pulmonary Hypertension (CTEPH).
Shelly's op, which took place at Royal Papworth Hospital is being shown on 'Surgeons: At the edge of life'. We'll be watching!
------
(📸: Royal Papworth)
Research
The Scottish Pulmonary Vascular Unit runs programmes in clinical and basic science research
PHA UK FACEBOOK FEED
This message is only visible to admins.
Backup cache in use.
As #OrganDonationWeek continues we'd like to give a shout-out to PHA UK member Michelle Hemmings (pictured in the middle) who has organised a range of events to raise awareness of transplant and organ donation.
Michelle received a double lung transplant in 2018 after living with #pulmonaryhypertension
"We need to have more conversations about organ donation"
Today marks the start of #OrganDonationWeek and in this special article, PHA UK member Paula Massie tells her #pulmonaryhypertension transplant story. Please share and let's get people talking: bit.ly/3bySNBj
If you're aged 11-18, the BBC Young Reporter competition could be a great opportunity to share your PH story. Maybe you have pulmonary hypertension yourself, or you live with someone who does? The competition is designed for young people to tell their unique stories on TV, radio, online or on social media with the help of BBC journalists, producers and programme-makers.
Find out more here: www.bbc.co.uk/teach/young-reporter/competition/zghcydm
Iain Armstrong, co-founder and chair of the PHA UK, on being named Respiratory Nurse of the Year by the British Journal of Nursing 👇
We loved receiving this beautiful card at the office yesterday. Clinical nurse specialist Sian Richardson sent it to say thank you for the support from the PHA UK during the pandemic, and the collage was made by her godchildren Thomas and Phoebe.
Zoom in and you'll see photos of wildlife making up the layers of the rainbow 🌈
The autumn issue of Emphasis has gone to print and will be dropping through letterboxes towards the end of the month 📮
The magazine is free for members of the PHA UK - join now (also for free!) at www.phauk.org or send us a private message
"My motivation for my work has always been the patients, who are at the centre of everything"
Last week, our chair and co-founder Iain Armstrong was named 'Respiratory Nurse of the Year' at the British Journal of Nursing Awards. Read all about it here: bit.ly/2QWl0si
💜💙 We want to take a moment to say a big thank you to everyone who has been raising money for us over the summer (and throughout the year!) Your fundraising and donations mean we can continue our work to support people affected by PH and we are so grateful 💜💙
The first of many reminders as we head into autumn 😉
This year it's more important than ever to make sure you get your flu vaccine. It's free if you have PH (and also, this year, for those you live with too). Find out more here: www.nhs.uk/conditions/vaccinations/flu-influenza-vaccine/
If you have applied for benefits over the last few months, have you had your assessment via telephone or online?
We're interested to know what your experiences have been - good or bad! - to aid future discussions with the agencies who carry out the assessments and the DWP themselves. Please comment below or send us a private message if you would be willing to share them with us.
We are very proud to announce that our Chair Iain Armstrong has just been named Respiratory Nurse of the Year in the prestigious British Journal of Nursing Awards 👏
This is a national award that recognises the huge impact Iain has had in the field of pulmonary hypertension and the difference he has made to patients. Please join us in congratulating Iain and thanking him for his contribution.
It's free to become a member of the PHA UK and we welcome anyone with a connection to pulmonary hypertension - including carers, loved ones, and healthcare professionals too.
Simply fill in the short online form here: bit.ly/3jnLzmA
Or, you can send us a private message or email.
Joining means you'll receive our award-winning Emphasis magazine through your door 4 times a year 💙
Need help when it comes to applying for benefits? Download our free guides here 👉 bit.ly/3gwbcj9
------
Topics include:
💰The types of benefits available
💰Important definitions and phrases
💰The WHO functional class
💰The 3-stage appeals process
We have a little visitor in the PHA UK office today and we think it's safe to say he is happy to be here! 🐶
PHA UK TWITTER FEED
Catch up on the latest from patient organisations in this month's round-up!
It's great to see plans to resume some annual events such as fundraising activities and conferences later in the year.😀
https://europeanlung.org/en/news-and-blog/patient-organisation-round-up-april-2021/
@Lovexair @EuropePHA @TBECoalition
New product alert! 👜
Our reusable cotton branded shopping bags are available to order online now for just £4.99.
Ditch the plastic bags & raise awareness of #pulmonaryhypertension while you shop: https://bit.ly/2OQtN1H
