LATEST NEWS
Pulmonary Hypertension and the DVLA
Travelling and going on Holiday with Oxygen
Vaccinations
SPVU Patient Day 2018
HEALTH CARE PROFESSIONAL
– Who to refer
– Suggested assessment prior referral
– How to refer
– Who to screen
– Assessment and follow up at SPVU
Our teaM
SPVU FACEBOOK FEED
Visit PHAUK website for helpful tips about travel insurance. bit.ly/37Q5Fjf?fbclid=IwAR0tfJF7GjJTFQfaGhYaiI4O7iRHa4oAdqOaZwgqhV6uGpAxye-ZniaYkMkWe've updated our list of those who provide travel insurance to people with pulmonary hypertension: bit.ly/37Q5Fjf
Thank you to everyone who made recommendations; do let us know if you come across any other providers.
CONGRATULATIONS TO Dr GEESH on being awarded his PhD! 🎉🎉🎉🎉🎉🎉🎈🎈🎈🎈🎈👏👏👏👏👏👏
We loved having you at SPVU, Geesh! Best wishes for future endeavours. Don't be a stranger!
For medical followers of our page:
twitter.com/acchurch1/status/1223711753000886275?s=19
Hop onto YouTube to see a new video posted by the wonderful PHAUK.
bit.ly/37NStw6
#audit #BigData #goldenjubileenationalhospital #phauk
A closer look at the National Audit of Pulmonary Hypertension
t.co
The National Audit of Pulmonary Hypertension is more than an NHS tick-box exercise. In this video, Professor David Kiely, who as a clinician will work with t...Dr Martin Johnson shares with international colleagues the positive results of SPVU clinical research. He is an invited speaker at the Pulmonary Vascular Research Institute 14th Annual World Congress.
Global Collaboration of this sort is vital. As you know, pulmonary hypertension is a rare condition.
By the way, this year's Rare Disease Day is on 29th February. Visit www.rarediseaseday.org for some cheery graphics and details of international events and patient stories.
OPINION SURVEY ALERT 👇👇👇👇👇👇
www.facebook.com/331773100361224/posts/1365320103673180/?sfnsn=scwspmo&extid=inL5GqkG5bm1dBOg
To understand the science behind pulmonary hypertension and promising future treatments, important work continues behind the scenes in Universities. Our thanks to the talented scientists named below, and for the close relationship our unit has with them and Glasgow and Glasgow Caledonia Universities. A shout out to Dr Chris Carlin, one of our former senior Research Fellows who some of you might remember. 👏👏👏👏 twitter.com/YvonneDempsie/status/1214580376808697856?s=19
👏👏👏👏Say hello to the new PAH Patient Charter. Thank you to its creators and contributors.
twitter.com/wginsing/status/1194194373258465280?s=09
twitter.com
“The #PAHPatientCharter launches today! Proud to have been involved in the creation of this special resource to empower people living with #PAH t.co/FtfCuzdOZ6 @PHA_UK @Imperialpeople @Europ...Care to weigh in, in the comments below, on how it makes you feel?PH Awareness Week marks 5 years since Liesl Andersson was diagnosed with #pulmonaryhypertension.
In this blog, she calls for people to be more understanding of those with hidden disabilities: bit.ly/2oAPaqv
------
#PHWeek19 #TogetherForPH
Worth considering...
#phweek19We're talking a lot about the emotional impact of pulmonary hypertension this week. As a PHA UK member, you can access free support via our partnership with Anxiety UK - so you don't have to struggle alone. Find out more here: bit.ly/2WIMt2F
#PHWeek19 #TogetherForPH
Well done to all who are getting the message out there for #PHAwareness. Best wishes to the young woman featured in the news story. With modern treatments and specialist care she is doing well! Her story may strike a cord with some of our Scottish patients on the same or different treatments.
www.itv.com/news/meridian/2019-11-07/pulmonary-hypertension-the-rare-lung-condition-with-new-cure/
Pulmonary Hypertension - the rare lung condition with no cure
www.itv.com
A primary school teacher from Kent, who was diagnosed with a rare lung condition, was first told she may have asthma. Alex Charlesworth from Dartford is now trying to raise awareness of Pulmonary Hype...Another of our clinical research fellows looking at specialist care for people with PH who have to undergo surgical operations
One of our current clinical research fellows shows the results from Alison MacKenzie's exercise study. The results were positive.
Many, many thanks to ALL of our wonderful research participants 🙏, and particularly in this instance to those who took part in the exercise study. 💪
Research
The Scottish Pulmonary Vascular Unit runs programmes in clinical and basic science research
PHA UK FACEBOOK FEED
If you shop on Amazon, you can support the PHA UK without spending another penny! Just follow this link before you start and 0.5% of your eligible purchases will come straight to us: smile.amazon.co.uk/ch/1120756-0
Easy! 😃
We have just learned that the manufacturers of PH treatment SLOZEM® (which contains Diltiazem) have discontinued its production. Alternative brands are available, and it will be safe for you to stop Slozem when your current supply runs out and start on the alternative brand the very next day. Follow this link for more information and expert advice: bit.ly/2PqIPbv
Big thanks to the Winston Churchill pub in Bradford, who are holding a fundraising day on March 21st 🎉
Check out their event page here: bit.ly/2Vo59Gl
We've updated our list of those who provide travel insurance to people with pulmonary hypertension: bit.ly/37Q5Fjf
Thank you to everyone who made recommendations; do let us know if you come across any other providers.
The spring issue of Emphasis is now at print, so will be landing on doormats towards the middle of March.
We hope you enjoy reading it as much we enjoyed putting it together! 🥀
If you're attending the specialist PH centre at the Royal Hallamshire Hospital, please be assured there is nothing to worry about re. the coronavirus.
Sheffield Teaching Hospitals have issued the following statement:
"We are caring for two patients with Coronavirus #COVID-19 in our specialist Infectious Diseases Unit at the Hallamshire Hospital. There is no risk to other patients or visitors coming to any of our hospitals because the Unit is self contained with a dedicated team of specialists and the patients have not been cared for in any other areas of our hospitals or community services. All our services are operating as normal and patients should attend their appointments or procedures as planned. Visiting arrangements are also not affected."
Registration is now open for The British Transplant Games 🎉
Taking place in Coventry in July, the Games are open to anyone who has had a transplant - including both adults and children. There are 21 different sporting events to choose from, including everything from swimming, athletics and cycling to archery, cup stacking and the obstacle course.
Find out more and register here: www.britishtransplantgames.co.uk
*New resource* Published with the help of experts in paediatric PH and families living with the condition, this guide aims to help you understand more about pulmonary hypertension in children - and the care and support available.
Order it for free via our website: bit.ly/37FT5mn
We're updating our list of travel insurance providers who cover for pulmonary hypertension - if you would like to recommend someone, or let us know who you have used, please post in the comments below ✈️
What do you notice first when you see this photo? 🤣
Thanks to member Jayne for sharing this brilliant pic of her at a family day at her son's army training barracks. "Us PH’ers get everywhere!" she said.
------
Do you have a photo that shows you flying the flag for PH at an unusual location? Send it in a private message or email media@phauk.org 💜
Tonight at 5.30pm and 7.30pm CBBC are showing a documentary called My Life, My Heart, which follows the story of Jack, now 13, while he waited for and eventually received a heart transplant.
Aimed at a young audience, the programme is a good way of introducing children to conversations around transplant and organ donation. If you watch it, let us know what you think!
------
#passiton #giftoflife #havetheconversation
We know that it's difficult to be told you may have pulmonary hypertension - especially when you don't know much about it. That's why we've produced this guide especially for people who may have been referred to a specialist centre for diagnosis.
Order your copy for free here: bit.ly/2vys6M4
We're delighted to share that our Chair Iain Armstrong has been shortlisted in the 'Respiratory Nurse of the Year' category at the prestigious British Journal of Nursing Awards 🎉
Read the full story here: bit.ly/39wsgTg
PHA UK Chair Iain Armstrong swapped nursing for modelling yesterday during a photo shoot at our resource centre 📸
We think he might have secretly enjoyed it... 😉
PHA UK TWITTER FEED
Fabulous support from this college, thank you 👏
Hope you're not too achy today guys!
Good luck to our team of runners who are braving the #BrightonHalfMarathon this Sunday 23rd Feb!
Our fabulous staff members are running to raise money for the annual #PlumptonCollege for the fantastic charity @PHA_UK It's not too late to donate!
http://ow.ly/ENDZ50ysrVH