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Pulmonary Hypertension and the DVLA
Travelling and going on Holiday with Oxygen
Vaccinations
SPVU Patient Day 2018
HEALTH CARE PROFESSIONAL
– Who to refer
– Suggested assessment prior referral
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ScotGov have published some advice for those leaving shielding today. If anyone has any worries or concerns about the pausing of shielding please give us a call on 0151 951 5771/5623/5621 and we can have a chat.
😷 Wearing a face mask if you have pulmonary hypertension may not make you happy, but, if you can, do wear a mask.
If you find it particularly difficult to wear a mask, you are exempt. The First Minister has made it clear you do not need a certificate to justify this to members of the public.
If you prefer to have something solid to hand to explain your situation, visit
www.phauk.org/coronavirus-pulmonary-hypertension/mask-exemption-notice/
www.phauk.org
If you have pulmonary hypertension, you do not have to wear a mask if it affects your breathing or makes your symptoms worse. You are exempt even in places where wearing a mask is required...The British Lung Foundation has some pointers about mask wearing. You could give it a try if you feel up to it.
twitter.com/lunguk/status/1287751048350830607?s=19
British Lung Foundation on Twitter
twitter.com
“*THREAD* If you can, please wear a face covering in enclosed spaces where social distancing may not be possible or when you come into contact with people you don’t normally meet. It’s a good id...UPDATE.
PLEASE READ THE WHOLE POST AND CONTINUE TO KEEP SAFE. REMEMBER TO WASH YOUR HANDS OFTEN WITH SOAP FOR AT LEAST 20 SECONDS OR USE HAND SANITISER.
Shielding is set to pause on 1st August. Wait till 1st August, but we are nearly there 🤜🤛
THE SCOTTISH GOVERNMENT ADVISES FROM 1st AUGUST:
⚠️ You can go to shops, pharmacies, garden centres and indoor markets wearing a face mask
⚠️ You can go to the hairdresser's or a barber wearing a face mask
⚠️ You can go to pubs and restaurants with outdoor spaces
⚠️ You can meet up indoors with up to 8 people from 2 other households, with social distancing
⚠️ You can meet outdoors with up to 15 people from 4 other households, outdoors with social distancing
For the whole list and more, visit www.gov.scot/publications/covid-shielding/
Telephone your clinical specialist nurse if you are unsure and would like some tailored advice.
Coronavirus (COVID-19): shielding advice and support - gov.scot
www.gov.scot
Details of shielding advice to help people make informed decisions and access support services.The Scottish Government shielding route map. Hopefully you’ll be able to enlarge this photo enough to read it. If not you can view it here
www.gov.scot/binaries/content/documents/govscot/publications/advice-and-guidance/2020/03/covid-sh...
Timeline PhotosOur quick guides to understanding key aspects of the benefits application process are available to download now: bit.ly/3f5Gldi
Choose from:
✔️ What benefits are available
✔️ Important definitions
✔️ The WHO Functional Class
✔️ The appeals process
We know the process can be daunting, so we hope these free resources help 💙
*Downloadable mask exemption notice*
Get yours here 👉 bit.ly/2VOaDd5
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If you have pulmonary hypertension, you do not have to wear a mask if it affects your breathing or makes your symptoms worse. You are exempt even in places where wearing a mask is required, for example on public transport in England and Scotland.
We understand that PH is an ‘invisible illness’ and therefore those around you may not understand why you are not wearing a mask. That’s why we have designed a printable notice that you can carry with you, and display if you are challenged. You can also show it on your phone.
If you don't have a printer, please email office@phauk.org and we will happily post you one out.
We know that for some people with PH, wearing a mask or face covering can be difficult. We're working on a downloadable notice that you can print and carry with you should you be challenged, explaining that you have a condition that affects your breathing.
Young children and people with disabilities or breathing problems are exempt from having to wear a mask in areas where it is compulsory (such as on public transport) - but we know that PH is an invisible condition and others don't always understand. Look out for the notice coming soon 💙
New Scottish Government Advice.
From 19th June, if you are Shielding:
⚠️ Stay at home as much as you can until at least 31st July
⚠️ Avoid going places that are indoors
⚠️ Keep 2 metres away from other people
If you go outdoors:
⚠️ Try to avoid touching objects and surfaces
⚠️ Maintain strict physical distancing of 2 metres or more
⚠️ Try to choose times and areas that are quiet
⚠️ Stay close to home so you do not have to use a toilet that is not your own
⚠️ Wash your hands for at least 20 seconds as soon as you get home
www.mygov.scot/coronavirus-if-you-need-to-stay-at-home/
As ever, get in touch with us at the SPVU if you are looking for further clarification for your particular situation.
Coronavirus - if you need to stay at home - mygov.scot
www.mygov.scot
What support you can get if you need to stay at home because of coronavirus.Chief Medical Officer, Scotland has issued new advice. Summary in bullet points: 👇
⚠️ Shielding to continue till 31st July
⚠️ Watch out for an announcement around 18th June allowing exercise out of doors, providing you follow guidance to do this safely
⚠️ The Country acknowledges the personal sacrifice you are making by shielding. It is clearly working by keeping infection rates down 👏
⚠️ Some face to face health care appointments are necessary, although many can be handled by telephone or video-link
If in doubt, give us a call ☎️. We are here to help.
twitter.com/PHA_UK/status/1269716267491082242?s=19
twitter.com
“Our partnership with @turn2us_org gives you free access to a benefits calculator and grants search tool - helping you work out exactly what you could be entitled to. You'll find both online tools h...Shielding advice for Scotland is unchanged, confirms First Minister Nicola Sturgeon.
A big clap for all those shielding at home. We know it's not easy. Keep up the effort. We are proud of you.
Hello! Something new to bring to your attention. 👇
You can enter your Covid Pandemic experience in a survey being carried out by the European Reference Network of Rare Lung Diseases (ERN-LUNG). Please use the link below, or copy it into your browser, if you would like to go ahead. This is a global survey dedicated to PH patients.
Participation is voluntary.
ern-lung.eu/portfolio-items/phcare-covid-survey/
Well done, Warrior Tess
www.facebook.com/331773100361224/posts/1460947847443738/
Research
The Scottish Pulmonary Vascular Unit runs programmes in clinical and basic science research
PHA UK FACEBOOK FEED
Our short survey about apps and pulmonary hypertension closes on Sunday!
If you haven't already, please take 5 minutes to share your thoughts about an app that might help you manage your PH: www.surveymonkey.co.uk/r/SHP8YFL
Our private Facebook group is a safe place for you to chat to other people affected by PH and even if you don't want to post, you can benefit from reading the conversations. Follow this link to join: www.facebook.com/groups/125342770826215/
Do you need help to manage anxiety, panic or worry?
We’ve partnered with psychology researchers to trial a new self-help programme and we're looking for people with PH to take part. It can all be done from the comfort of your own home - there is no need to travel anywhere and you can work through the programme at your own pace. More details: bit.ly/3kcZixz
Did you know we have a separate website dedicated to helping you live your life with PH? Our lifestyle site is packed with real life stories, general health advice, blogs, videos and more 🧡 Check it out here: www.phocusonlifestyle.org/
Thank you to everyone who has filled in our short survey about apps and pulmonary hypertension. If you haven't yet, please take 5 minutes to let us know whether you would find an app to manage your PH useful. If you're not interested in apps, it's still important to let us know this in the survey: www.surveymonkey.co.uk/r/SHP8YFL
A few more of your photos from yesterday's #walkwithus virtual event. Keep them coming, we're really enjoying seeing them! 🚶♀️🧑🦼
Our littlest #walkwithus participant Isla walking for PH today at just 16 months old!
Thank you to mum Louise for sending the video 🧡
Here are just a few of your fantastic photos from today's #walkwithus virtual event. Wherever you walked, and however far, we'd like to say a huge thank you - and look out for a special video featuring highlights from your challenges coming soon! 🙌
Don't forget to send us your pics and videos 👍
PHA UK member Julie is walking with her friend and grandson and they sent us this little video just before they set off - good luck gang!
#walkwithus #TogetherForPH
Good luck to everyone walking today! Sid the spaniel is ready to walk in memory of his dad Josh Parker 💛🐶
#walkwithus
If you're taking part in our virtual #walkwithus event tomorrow, don't forget to take a pic and send it to us 🤳
You can either send it as a private message or via email to media@phauk.org - and you might see yourself online or in the next issue of Emphasis!
Could this be our youngest #walkwithus participant?
16-month-old Isla has just started walking and will join her mum Louise, who has PH, on Saturday 🥰
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Find out how you can get involved in our virtual event here: bit.ly/30biVy1
This weekend would have seen The British Transplant Games taking place in Coventry, celebrating life after transplant.
As the PHA UK was due to sponsor the walk event, our #walkwithus virtual event will be taking place on Saturday at 1pm, and is open to all: bit.ly/331ULIl
We're looking forward to the Games returning in 2021 🙌
The weather forecast is looking good for Saturday and we can't wait to walk! ☀️
Comment 'me' below if you'll be taking part in our virtual walk event (either on foot, on a scooter or in a chair)
No idea what we're talking about?! You'll find all the info about #walkwithus and how you can get involved here: www.phauk.org/get-involved-with-the-pha-uk/walk-with-us/
PHA UK TWITTER FEED
We spoke with Dr John Wort, our clinical lead for pulmonary hypertension, about how Covid-19 has impacted his work, adapting to care for vulnerable patients and providing specialist expertise to support frontline staff. Read more here: https://www.rbht.nhs.uk/research/impact-covid-19-interview-dr-john-wort